Islington Community Paediatrics: Pathway for Down's Syndrome
Who is this care pathway for?
Who do we see?
Who can refer and how?
How to use this tool
- Who we see?
- Who can refer and how?
- Care Pathway: gives a flow-diagram type overview of the pathway
- Detailed actions: sets out in more detail what is involved in the different parts of pathway
- Associated documents: more for use by professionals
- Resources: these are links to relevant web sites
- Quality standards: this is a list of the quality standards that we report on annually on this web site and these are designated by QS where they appear in the text
Care Pathway

Detailed Actions to be Completed
Referral Received |
Please note that in our service:
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Referral Triaged
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All referrals are triaged by a consultant paediatrician. Additional information will be requested if there are any gaps identified in the information provided. From the information available, referrals to therapy services may be generated, e.g. audiology and ophthalmology for hearing and vision monitoring. All children in this care pathway will come under the Islington Additional Needs Disability Services (IANDS) for provision of therapy input as needed (occupational therapy, physiotherapy, speech and language therapy, and dietician). In keeping with national standards, children are offered their 1st appointment at 6 months of age.
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First Appointment
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You will be seen by a paediatrician who will go through the following:
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Follow up Appointments
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Again your child will be seen by a paediatrician who will go through the following:
If your child goes to a special school other than Sam Rhodes they will be seen by the paediatrician in their school. If your child is in a mainstream school or Sm Rhodes they will remain with the paediatrician at the Northern Health Centre for follow up. Your child will continue to be followed until they transfer to adult services. |
Transition to Adult Services
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Preparation for and transition into adult services is a multidisciplinary process involving Education, Social Care and Health. We will participate in the transition process to adult services and make any relevant referrals to adult medical services and/or the adult Disability service. |
Associated Documents
Resources
Useful links | |
Down Syndrome Association | This is a registered charity with Downs syndrome, their parents, carers, and professionals. |
Downs Syndrome Medical Interest Group | This site provides essential information for healthcare professionals on 'best practice' medical care for people with Down syndrome in the UK and Ireland. |
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This is a charity offering support and information relating to heart conditions associated with Down's Syndrome.
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DSE works to improve early intervention and education for children with Down syndrome everywhere. We support scientific research and provide evidence-based resources and services to help over 100,000 parents and professionals in over 170 countries each year.
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A group for parents of children and adults with Mosaic Down Syndrome.
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NHS website giving Down Syndrome information.
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Centre 404 is a voluntary sector organisation that offers a range of high quality services to assist children and adults with a learning disability and their family carers. These include: direct support, information, respite, activities, advocacy, help with personal budgets, form filling, and access to social groups and other local networks.
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The summaries the LBI Local Offer of all the help there is in the Islington area for children and young people aged 0-25 with special educational needs and disabilities.
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This information is for parents/carers of children with special educational needs and/or disabilities. It explains the support we offer in Haringey for those children and young people. This is called our ‘local offer’.
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When a child has exceptional need for education, health and social care support that cannot be met from resources/assessments/interventions normally available, they will need an Education, Health and Care Plan (EHCP).
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Disability Living Allowance (DLA) for children
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Disability Living Allowance (DLA) for children may help with the extra costs of looking after a child who:
is under 16 AND has difficulties walking or needs more looking after than a child of the same age who doesn’t have a disability. |
Quality Standards Table
QS-1 |
We will send out our clinic letters within 2 weeks of the appointment
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QS-2 |
We welcome, actively seek and act on feedback from all who use our services
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